Educator · Speaker · Rare-disease advocate

The boy who held the wall, now holds the room.

Zoyeb Mohamed Zia was about 15 when ataxia began to take his balance. Today he teaches Zoology at the college that taught him.

Chapter 01

The hidden years

At Asan Memorial Senior Secondary School in Chennai, Zoyeb kept his grades up and joined in class and on the field just enough that no one suspected anything was wrong. Crossing the courtyard got harder. He took a narrow passage by the cycle stand and held the walls on his way to class. He hid it for about three years. Then his father, Iftikhar, insisted on doctors, and a neurologist gave it a name: spinocerebellar ataxia, a rare degenerative condition that affects balance, coordination and speech. Two years of hospitals across India followed, and the hard truth that there is no cure yet.

A sunlit classroom
The classroom, where the story turns.
Chapter 02

Back to the classroom

He kept studying. At The New College he earned a B.Sc., an M.Sc. and an M.Phil. in Zoology and cleared the State Level Eligibility Test. Then he returned as an Assistant Professor at the same institution. "I enjoy being in the company of students," he says. "Some who know me well address me as bhai." Today he calls himself a Professor of Zoology, Ataxic, Gamer, Foodie, and Champion for Rare Diseases. He is preparing for a doctorate and hopes to run his own research lab one day.

“Don't let disability come in the way of the things you love.”Zoyeb, India Inclusion Summit 2018
Timeline

The journey

  1. School years

    Asan Memorial Sr. Sec. School, Chennai. Kept his grades up while quietly hiding his symptoms.

  2. Around 15

    Symptoms begin. Diagnosed with spinocerebellar ataxia.

  3. The search

    Two years of hospitals across India with his father, Iftikhar, learning there is no cure yet.

  4. The New College

    B.Sc., M.Sc. and M.Phil. in Zoology. Cleared the State Eligibility Test.

  5. In the classroom

    Assistant Professor of Zoology at his alma mater. Students call him 'bhai'.

  6. 2018

    Hosts and speaks at the India Inclusion Summit.

  7. Next

    Doctoral research towards ataxia, and a research lab of his own.

Chapter 03

Speaking up

On stage at the India Inclusion Summit and at awareness runs and events, Zoyeb talks about rare diseases, inclusion, and building a life around the things you love. Ataxia is still poorly understood, even within the medical community. He wants that to change, and he wants people living with it to have support.

Friends togetherStage and audience
In print

Press & talks

Reach out

Write to Zoyeb

Invite him to speak, request an interview, or share your own rare-disease story. Every message is read.